Ethical Considerations Choosing To Have Deaf Children

For culturally Deaf families, where there are many relatives in the family who are d Deaf, there may be a preference for having deaf children. This concept is not new and has been well documented in the past (Hoffmeister, 1985 Dolnick, 1993 Erting, 1994 Israel, 1995 Middleton et al., 1998a). Research from the author has indicated that a very small number of d Deaf people may consider the application of pre-natal genetic testing for deafness with selective termination of pregnancy if the foetus...

Question

The fourth question on the patient questionnaire asked 'Are there any other effects that NF2 has had on your life ' Thirty-eight responses were received from 19 patients.The responses were designated positive, negative and neutral. Six positive responses were received from 5 patients. Twenty-seven negative responses were given by 14 patients, as well as five neutral responses by 5 patients. The positive responses to question 4 are shown in Table 14.12. Where responses came from the same...

Assumption And Stereotypes

Assumptions made by professionals about attitudes to termination mean that sometimes parents feel uncomfortable about asking either for prenatal testing in the first instance or for a termination. This may mean that more individualised approaches need to be made to couples seeking genetic counselling. Caucasian clinicians may feel that in the current atmosphere of cultural sensitivity they will offend by saying the wrong thing to people from a different religion to themselves. This may prevent...

T R Q

Item 1 Item 2 Item 3 Item 4 Item 5 Item 6 Item 7 Item 8 Item 9 Item 10 Item 11 Item 12 Item 13 Item 14 Item 15 Item 16 Item 17 Item 18 Item 19 Item 20 Item 21 Item 22 Item 23 Item 24 Item 25 Item 26 Total score 2.0 + .05 2.2 + .05 2.0 + .06 1.8 + .06 0.9 + .05 1.1 + .06 1.7 + .07 1.6 + .06 2.5 + .05 1.8 + .06 2.2 + .06 2.5 + .05 1.9 + .06 2.2 + .06 2.0 + .06 2.0 + .06 1.1 + .06 2.1 + .08 2.3 + .07 2.1 + .08 1.9 + .08 2.3 + .07 2.6 + .07 1.9 + .08 2.2 + .09 2.1 + .08 2.1 + .08 1.2 + .08 2.2 +...

Family Sphere Relational

This category includes extracts that involve the interaction of family members that involve a relational aspect as described in the relational category. This category is extremely complex and a further analysis of this group can be seen in a later section. The following extracts show examples of experiences of relational issues in the family sphere. S I suppose, basically knowing that you have a family history - has that had any effect on how you feel about your hearing loss For example do you...

Ns 04 Ns 01 Ns

Hard to concentrate -.05 NS .012 NS -.06 NS hard to relax -.10 .029 -.10 NS -.17 .008 Q feel distressed -.15 .0001 -.20 .0001 -.19 .004 feel helpless -.18 .0001 -.18 .002 -.24 .0001 -d interfered with -.10 .002 -.03 NS -.16 .016 O ability to work 19 led to despair 20 avoid noisy about the future 23 interfered with my sleep 24 led to think about suicide 25 feel panicky 26 feel tormented Total score

Medical Or Cultural Model

The 'pathological' or 'medical' model perceives deafness as a medical defect to be treated, corrected or cured. For example, an ENT surgeon would advocate the use of cochlear implants and an audiologist prescribes hearing aids, both taking the perspective that to be hearing, or as close to this as possible, is the preferred option for the client. However, this perspective starkly contrasts the way deafness is perceived via the 'cultural' or 'linguistic' model. Here deafness is not viewed as a...

Outside Family Sphere Transactional

This category covers the descriptions of everyday tasks that do not involve family members. The following extract provides an example of transactional experiences outside the family sphere. S . . . are there any negative aspects of your mother's hearing loss that you feel yourself or your mother had When you go into the shops and people didn't understand. I Yes that is I suppose. Even now when I shop at Sainsbury's, so if you are paying by card they always ask you do you want cash back do you...

Communication And Faith Identity

A study of the impact of faith identity on chronic illness management in the Pakistani community (Mir, 2005) reveals that reference to faith is considered part of an appropriate response to the diagnosis of a chronic condition for Pakistani people. Religious beliefs provide a therapeutic resource and can offer individuals an emotional distance from the chronic condition by placing it in the wider context of human experience as a whole. The ability to distance oneself from a chronic condition in...

Impact

The bald facts do not convey the stress, patience and effort it has taken, by my family, friends and colleagues at work to allow me to achieve such a normal life. On becoming deaf the first thought was one of shock, quickly followed by irritation. I had so many plans for life and deafness threatened to disrupt them The Effects of Genetic Hearing Impairment in the Family. Edited by D. Stephens and L. Jones. Copyright 2006 by John Wiley & Sons, Ltd. all. My wife, a nurse, seemed to take our...

Training Needs And Time Constraints

Knowledge about genetic terms and concepts need to be taught in training courses for interpreters or link workers. Health professionals may also be unused to working with interpreters and may need to learn how to do this effectively. Health professionals also need to have the confidence to ask parents to wait for an appointment to be booked with a suitably qualified interpreter. Obviously this is not always possible and because of time constraints this inadequate provision, without interpreting...

References

Adams-Spink G (2004) NHS 'failing' deaf patients. BBC News website http news. bbc.co.uk 1 hi health 3527099.stm 03.03.04. Andrews LA, Fullarton JE, Holtzman NA, Motulsky AG (1994) Assessing Genetic Risks Implications for Health and Social Policy. Committee on Assessing Genetic Risks, Institute of Medicine. Washington, DC National Academy Press. Arnos KS, Israel J, Cunningham M (1991) Genetic counseling of the Deaf medical and cultural considerations. Annals of the New York Academy of Sciences...

Counselling Issues

Hearing children learn to express their emotions through voice and language they are also taught to label their feelings via spoken interaction with their parents. However, sometimes deaf children born to a hearing family may have a delay in acquiring their communication skills and therefore may have a delay in emotional and cognitive processes (Henderson & Hendershott, 1991, in Ralston & Israel, 1995).This means that as d Deaf adults they may find it more difficult to express and...